Sometimes

The last few weeks, or months, have been very busy at my father's employer. These are times when tempers are short and somedays nothing can go right. Yesterday was one of those days, as well as last week.

One of yesterday's problems was making supper. My parents could live off of nothing more than sandwiches, but I need more protein and nutrition than a sandwich can provide to stay healthy. The complaints went that I should eat more at lunch so we wouldn't need to eat much at night. Unfortunately, this is when I'm, sometimes, busy and want to get finished quickly.

The other problem is expense of medical care. We private hire about half of my assistants that get paid out of pocket and reimbursed by insurance. Unfortunately, insurance is slow at paying and the costs continue to increase to keep it. With these and more problems, I keep wondering when it will be time to move to a care facility.

In Iowa, there is only one place that will take people on a ventilator, and it's not a very good facility. Programs exist to allow persons with disabilities to live on their own, unfortunately I have not seen one for someone with my needs.

Moving to a nursing home and using Medicare and Medicaid would greatly ease the financial burden on my parents. It would also allow them to do what they please without having to take care of my needs. Unfortunately, the care I would receive would not be as good as it is now and I would be about three hours away from my family.

At the end of this summer, I am considering making this change. It would be difficult at first, but I think better for everyone in the long-term.