I have been a quadriplegic most of my life, through all its twists and turns. I've learned to expect the unexpected, and to rely on God's care and plan at all times.
Monday, May 26, 2014
Memorial Day 2014
My grandfather served in the Korean War. His main job was managing a type of general goods store. The requirement for the position was someone that didn't drink alcohol, since that fit grandpa, he got the job. If any beer was missing at the end of a shift that hadn't been sold, the person on duty had to pay for it. Knowing grandpa, I highly doubt he ever had to pay a cent.
Like many veterans, grandpa didn't talk much about his experiences in war. One thing he did say is that he was in boot camp with Elvis Presley. However, nobody liked having him around because he kept playing his guitar all the time.
There were several occasions where my grandparents would help watch me for various reasons. Unfortunately, grandpa didn't like to sit, so I taught him how to play solitaire on the computer during down times. He said that "the guys" played solitaire on the ship back from Korea, but he didn't know how to play. It's the only thing he ever learned to do on the computer, and I had to help him get it going every time, but it gave him something to pass the time when they were here.
The ultimate sacrifice though was 2000 years ago. Through Christ's death and resurrection there is a freedom that is not bound by a country's borders or laws. If we believe in Him as our Lord and Savior and are truly repentant of our sins, we will have the freedom to live with Him for eternity.
As we remember those who have gone before us, we look forward to the day when death the enemy has been conquered and all wars and suffering will cease.
Monday, May 19, 2014
Feeling
For me, I have full feeling from neck on up and some sensation on about the top inch of my chest. Everything else below that point doesn't give me any feedback. If someone touches my hand and I don't see it, I wouldn't know it happened. However, just because I don't feel below my shoulders, it does not mean feeling is gone. All the nerves are still in my body, their signals just don't make it to my head. One way my body reacts to being touched, or feeling something, is through muscle spasms.
I can be driving down a sidewalk, or riding in a car, and hit a bump and my arms and legs will flail in every direction, that's why they're strapped down. If I'm getting a shot or having blood taken for a test, my arm may react to the poke, but I don't feel a thing. I have been asked a few times, if I can't feel my feet, why do I go barefoot all the time. The answer, because my body still feels.
Preference is definitely part of the reason as well. I have read for many years about the benefits of Parents for Barefoot Children, the Barefoot Book, the Society for Barefoot Living (SBL), or the section on my site. The advantage for me skipping footwear, is that my body is much calmer, and has fewer muscle spasms. It also allows my caregivers to make sure I don't have any curled toes or anything causing pressure points.
There are many advantages to going barefoot, especially for kids, but those benefits are mainly for walking. I could easily write a few posts on the advantages of skipping footwear, but for now I'll refer any readers to the websites above.
Every day I can see my legs out in front of me, but I don't know if they're hot or cold, or possibly laying wrong. In many ways, it's like I'm attached to another person. I can see reactions, but don't get told why or what's going on. However, it does allow for some ways to take care of life's necessities. Since I can't feel, I get my bath at night while I sleep, one less thing to worry about during the day. I also can't feel the pressure sores that are likely very painful. You could also say though that I may not have gotten them in the first place if I could have felt problems forming.
Living as a quadriplegic is a unique life, but one that I've been given and will continue as God's plan continues.
Monday, May 12, 2014
One Nation under God, or is it?
A few weeks ago, an editor of a newspaper of a nearby town publicly said that gay organizations are trying to reword the Bible to make their sinful nature right with God. Unfortunately, he's right, but the paper didn't want to hear it and relieved him of his duties.
On April 22, a book titled God and the Gay Christian, by Matthew Vines, was released. It attempts to explain that God didn't mean for man and women to be together, but anyone a person feels as a companion. Vines tries to redetermine the need for creation of Adam and Eve as just a need for companionship, nothing more. You can read an analysis the book to see how far from the true word this book goes. A plain reading of scripture easily shows that homosexuality is a sin. Passages like 1 Corinthians 6:9-10, and Romans 1:26-27 are plainly against such behavior.
The United States is much like the nation of Israel that rebelled against God. In public schools, and even with the agreement of some churches, molecules to man evolution is being taught as fact. Students are being taught that life isn't special, we're just here by accident and are just pond scum. After you die, that's it, you won't know anything happened and after everyone else dies then they won't know anyone ever existed. We're seeing an increase of the result of this teaching on the news almost weekly.
More random violence of people being killed, especially in schools and college campuses. The life of an infant, a human being made by God, isn't anything special, just throw it away. A New Jersey woman released a video that she took while having an abortion. She was pleased that she could make a life and end it as she wanted.
I'm wonder if it's getting to be too late for this country to turn around and see the error of our ways. All authorities, or government, is put in place by God. That means we're what's being described in Romans 1, and it's unfortunately not hard to see. The religion of humanism, or atheism, is becoming more prevalent, and its followers more vocal and harsh against anything that doesn't agree with them, such as Christian teaching. What the future holds is in God's hands, but I'm afraid to see what is to come.
Sunday, May 4, 2014
Cracked Door
Friday morning, we were notified that the one program my DHS case worker was trying for had been approved. My private hired caregivers and parents are now basically self-employed as what's called a CDAC provider and five nights a week of care through the nursing agency is covered. So, that means every Friday and Saturday night are not covered and my day people will have A LOT more paperwork. Since the funding is through Medicaid, it has some restrictions.
Each month, I can go out five times for personal needs, such as going to the grocery store or Wal-Mart. Thankfully, my case manager said this can also include walks on the bike path by the dam close to town as it helps maintain a healthy mental state, or something similar to that. Unfortunately, it doesn't include as long of an outing as going to watch trains, so we'll see how to get that in. Having Saturdays with wonderful weather and a caregiver and not getting to the tracks would be irritating, so maybe I can get it as part of maintaining good mental health. As I currently understand it, everything is up for somewhat of a review, so that could be an item to discuss. This doesn't sound bad, but it comes with a time limit.
All of this is only in place for 60 days, which I believe starts this Wednesday, May 7, when insurance cuts off nursing care. During these next two months, I am supposed to find an alternative for funding my care. What that alternative is, nobody has an idea at this point. Therefore, I could be back to looking at a nursing home in early July again.
As I have said before, we read in Jeremiah 29:11, "I know the plans I have for you, declares the Lord..." With this development, my dad's employer can now drop the expensive insurance and go with another company. That also meas my parents no longer have to pay out of pocket to help cover that extra expense. Through these past few months though, I am very thankful for the parents I've been given.
They went through a lot of work and frustration to try and find alternative funding solutions and to get all the needed paperwork complete. Mom said at some points it felt like we were on trial, being asked what care I really need, when do I need it, and why different skill levels of care are needed at different times.
Through the next several weeks, it's likely that we'll experience more of it. God's direction through all the people He has put around me continues to be evident and will be as the quad life continues.