Most weeks, excluding my medical routines, I feel I do regular activities to other men. I work on whatever is needed for my job, study Scripture, and play some games for relaxation. This week though, has been mainly quad life activities.
The first four nights, Sunday through Wednesday, did not have a night nurse scheduled. Mom and I did the regular routine of staying up until 1:30 when dad took over. He finishes my cares around 2:00 and I
Monday, Brenda worked her regular shift and then another four hours Tuesday night so my parents could rest more. Unfortunately, that was her last regular shift with me. Brenda has finished her schooling in Iowa and now returned to her home in Arizona. When she started at age 19 in early 2022, I wasn't sure what we were getting into. However, she has been a blessing from God that my family has greatly benefited from. I'm thankful for the unique skills I was able to teach her and hope they will be useful in Brenda's future career. Now, I pray my remaining daytime caregivers will be able to cover all five days a week again.
Last Thursday, December 5, I made my regular monthly medication order. I had received a letter from insurance that rules had changed for one, but it sounded like it only needed an updated prescription. As with most things insurance related, that wasn't the case. Every day this week I had to call or email either my pharmacy, doctor's office, or insurance. First one thing was needed, then another, and at least once it looked like I could no longer get it. This Friday, I had a note from my doctor that insurance approved the medication and the pharmacy delivered it that day. Technically, I ran out of my month supply that day, but I've learned to accumulate a few extra with strategic order times.
I'm looking forward to a regular week coming up as we prepare for Christmas. I have also had trouble with a very stuffy nose and sore trach button the last few days, but I pray it clears up. Have a great final week before Christmas!
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