It Takes a Community

This morning, I preached my last scheduled time for a morning service. It had been scheduled that I wouldn't have help Saturday night. However, as the previous time, my one night nurse was willing to adjust his schedule so I could sleep prior to preaching. Therefore, he took off Friday night and tonight instead of Saturday.

From observing myself and other quadriplegic friends, our families tend to stay pretty isolated. Beyond whatever caregivers a person may have, it is generally the person's parents that take responsibility for care. Unfortunately, this is nearly, or completely, 24/7 care all year long for many years. You often hear well meaning intentions of help from church or other groups, but it rarely happens. The long-term needs and specialized care for some procedures scare most people away. This weekend though, I witnessed a change.

Friday afternoon, I had my usual medical cares done by my caregiver Sara. However, we both forgot I needed an extra chest treatment since I wouldn't get it that night. I could see she was tired from our busy day, so I offered to skip it or see if dad could get it later. No, Sara got it finished so dad wouldn't need to fit it in. It meant an extra 15 minutes to her shift, but she was willing to help.

Before I was born, mom became friends with a couple ladies she worked with. It has been over 45 years, but we remain close friends with these families and my parents have vacationed with some of them several times. By now, they are very familiar with our needs and regular struggles without nursing. Friday night, one of our friends came about 7:30 to help us through the night.

Last week, mom and I showed how we arrange my pillows and table to sit, lay flat, read, and use the computer. Friday night was review that went well. When I went flat for my final time at midnight, mom was able to rest in the other room while our friend and I stayed up until dad took over. It may have been less than 90 minutes, but it still provided a welcome break and further rest for mom.

This Labor Day weekend, let us pause and see who we are laboring for. Do we mainly serve our own needs, or are their areas we can help others more? Living the quad life makes for a lot of work, but I'm thankful for help from those around us. Every Friday and Saturday night in September will be without nursing care. However, on occasion, we may get more help than expected.