Adjustments

It's another week and time for another update. I have been sitting in front of my computer contemplating what what to write as it has been a fairly calm week. However, that doesn't mean nothing happened.

In January, I was notified that my request to continue with my caregiver hours was denied. The decision was asked to be reconsidered, and I have been waiting to hear since February. On Monday, my case manager called to say the hours had been approved, but only for six months. The six months that were approved are January-June. This is the end of April.

Unless I missed something, time travel is still not a thing. Therefore, we can't go back to January-March to increase hours. April's time had to be approved in late March and can't be changed either. That means the approved six months is actually just two. Yet again, more meetings and decisions will be coming.

I also decided to do a small medication experiment this week. Every morning, I take an allergy med that should last 24 hours. About 1.5-2 hours after I take it, I have a hard time staying awake. I therefore thought it may be better to take it at night with my sleep meds instead.

Wednesday and Thursday went by without much noticeable change. Friday morning was also fine, but then I started getting congested. I ended up getting suctioned five times in about six hours along with an extra chest treatment.

In order to keep junk from settling in my lungs, I get turned from side to side as needed. Sara, my daytime caregiver, had a busy day of rolling, repositioning, and keeping me able to breathe. As discomfort in my lungs continued, I started to wonder if I would be visiting the ER.

Thankfully, it started to improve toward evening. Dad did not need to suction, but still had to roll me a few times. Friday night also went pretty well, but Saturday morning had a stuffy nose and slightly sore lungs again.

I was last tested for allergies over 20 years ago and just take the medication as precaution. With this week's testing, I'm wondering if I need it more than I thought. Even though it says it's a full day, it doesn't appear to work as advertised. 

As I'm writing, I'm formulating a plan to get back to the regular time without missing a dose. Sometimes, trying to make a small change to improve the day ends up doing the opposite. Friday's reaction may have been completely unrelated to the medication change, but it's extremely unusual for me. Such is the quad life. I look forward to one more week at home before one with almost daily outings.