It has been a busy week, but I'm finally getting a chance to post. Last week I said we learned that it would not work for me to get nursing coverage through my own insurance. One of my case workers did some further investigating and found out I'm an oddity (no laughing).
In talking with my nursing agency, they said they don't have any private insurance companies that pay for nursing for their clients. They all have state funded services or have moved to a care facility. Apparently staying with what I we currently have is the best option.
Due to this development, my parents are going to try and see if we can do another year of staying on our current plan. Hopefully we won't need to go through all the work this year required to get everything covered.
After I graduated from college in 2003, Voc Rehab hired a job developer to help me find a job. After a few months, he decided that no employer would hire me due to potential insurance costs. Therefore, I was given the number to several nursing homes and told not to look for work. Now over ten years later, it seems like insurance wants to do the same thing.
Thankfully, quadriplegics like myself aren't very common, but there are a lot of us out there. In public and in my school talks, kids and adults don't know how to work with someone like me and what we can do. I keep working to change this thinking, but it's a long uphill battle. This week though, I did get to see a result of this work.
Sunday morning, I was sitting in my regular spot before church service had started and one of the boys I work with in Cadets came up to me and wanted help finding his family. A quick scan of the crowd found them and I directed him in the correct direction. Most people would forget this account quickly, but for me it was a victory of sorts.
I've been working with this kid since late last year and in that time he has learned to see me as any other adult. In the case Sunday, as someone he can go to for help. This is a rarity with a lot of people with severe disabilities, but doesn't need to be.
Hopefully my quad life can continue to help others, but we'll see what God has in the plan for this life in 2015 and the next week.
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