Today starts the last week of the month, and it has been a busy month. Tuesday will be my fourth school visit and finish what is currently planned. With more blessings than I can count, there have also been a few struggles.
For the most part, I'm liking the new trach button. I like having a free neck and the smaller profile of the button versus the trach. However, I've had a lot of drainage around it and we're cleaning around the area four times a day. With the trach, we only had to do once a day. The last few days have required a lot of suctioning (clearing out my lungs) due to a cold or something I have bugging me. It does work with the button, but not quite as easily and it does hurt my throat more. Hopefully the suctioning will return to normal soon.
Some good news, I am approved for Medicaid again. However, they added a stipulation that I need to pay over $200 per month in order to keep it. My main income is still Social Security with a little from working on web sites. September was my busiest month this year, and therefore I had more income from work. I pay myself a low rate and with it being busy, I still only had 25 hours for the entire month.
Even though my monthly average is well below last month's earnings, Medicaid based my monthly income solely on the last month. So as it currently stands, I will need to use a third of my income to pay for insurance that is for people like me that can't afford insurance. Using needs based income to cover needs based insurance just doesn't make sense. Now with monthly rent and uncovered medical expenses, it's going to be very difficult not to spend more than I receive. I'm well aware this what most people need to watch, but it still seems wrong.
As I tried to tell the kids in children's service today, we need to do things as God tells us, including not to worry. I know I say it often, but it's a hard one to do for me. I pray that next month will be calmer in the quad life, but I'm guessing it won't be a big change.
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