I have posted before that my parents enjoy going out on trips, but rarely get to as it's hard to find people to help me when they're gone. They both did get away in early June and are now in the midst of individual vacations.
A few days ago, mom and a friend left on a trip to a neighboring state. They had fun exploring different areas and seeing some sights. Dad and I had several days of just us in the house. I joined him outside with yard work one evening when my caregiver was due to leave, but he wasn't finished. It worked out well and we haven't starved.
Mom is scheduled to return later today and dad plans to take off tomorrow for a few days. He has had various ideas on what to do, but I'm sure watching trains at some location in the continental U.S. will be a big part of dad's plans.
Knowing other families that have a child, of any age, with a high-level spinal cord injury, it is very hard for parents to get away. Some can't go away at all for more than a few hours, and it often results in family problems. I'm very well aware that God has immensely blessed my parents and I with funding for caregivers and people to fill every night and 5-6 days a week. This is very rare and an extreme luxury in the world of spinal cord injury.
Even with this, I still sometimes feel like a burden to my family. They can't fully retire with me using dad's insurance and can't get out as often, or as long, as they would like. This has been the case for over 36 years, but it has become worse in about the last seven with no change in sight.
For now at least, I'm thankful for the times my parents can go and do their own thing. I also am thankful for the blessing God has given me with them and all that He has allowed me to do. Many changes are happening rapidly in America and around the world. I don't know what will impact living situations, but I can give thanks for what we currently have and know God has the future in His hands.
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