Another Exhausting Week

In late June, my main day nurse had surgery and will not be able to return until the end of the year. I have written about it a few times already, but I have thankfully had regular night nurses. Unfortunately, that was not the case this week.

The scheduler from my nursing agency mailed me in late August to let me know both of my night nurses had requested time off in September. Therefore, I wouldn't have any help September 1-7, a full week. Thankfully, my one caregiver's plans were flexible and he agreed to cover two nights. Labor Day on September 2 was also without day help. In a typical week, I currently have 11 shifts covered. This week ended with only five of the regular filled. Brenda, my college student caregiver, did come for a couple hours two evenings to help with my bedtime cares and allow dad to get to bed earlier.

Multiple days without assistance isn't anything new. I am very fortunate to have as many caregivers as I do and receive so much help. I know another quadriplegic in Iowa who is approved for funding to have 24-hour care at home. That alone is a big hurdle to overcome, but he has very few hours filled with nursing and is primarily just he and his mom. He has told me before that he stays in one place in bed all night while his mom rests and nervously waits until morning, hoping the ventilator and everything stays connected and working.

It is hard to see my parents getting little sleep and getting so tired they get ill. Weeks like this make me consider again about still living at home. Thankfully, this new week should have normal hours covered again and we can be more active.

One positive note came Saturday morning. My evaluation came for my sermon last week and I received 90%. The primary note was that I need to adjust my voice tone more often, something I already know needs improvement. Overall, my final grade for the course was about 89%. After 15 years of not taking formal classes, and a new course of study, it went better than I expected. 

Such is the quad life, I continue to rely on God's provision and give thanks for opportunities He has provided.