About a decade later, I was having trouble with pressure sores and very strong spasms even with the pharmaceutical assistance. I was started on an additional medication that also eventually increased to four times a day and the maximum allowed dose. It has now been over ten years with the schedule of two meds, four times a day, to control my muscles. Even with this, I still had a lot of trouble with stiffness and being able to function.
|Prepared for cold temps|
In 2019, my three pressure sores have been greatly improving. They didn't get any worse at camp and have continued to look good (as good as holes in your skin look). My primary day assistant says she has noticed the decrease in spasms since around June and thinks it may be due to decreased pain from skin issues.
Footwear still causes an increase in problems, but I have primarily been able to stay barefoot this fall and early winter due to mild conditions. Along with that, I have also been able to get on my exercise bike more often which also helps reduce stiffness. However, little to no muscle spasms can also indicate something is wrong in my body and has coincided with hospital stays.
Living the quad life can be a guessing game sometimes. Even if it's just one pill a day, I'm thankful to be able to decrease my medications and also side effects. I'm praying my caregiver is correct with the cause of the improvement, but time will tell. No matter what, I am thankful for at least the current change and pray it continues moving forward. I will see what another week with much colder temperatures brings.