Sunday, May 2, 2021

Stuck in the System

When I received my spinal cord injury in 1985, most of my medical expenses were covered by private insurance through my dad's employer. In 2014, due to the Affordable Care Act, I nearly lost that coverage. After a long trial, I ended up with private insurance covering nights and a program through Iowa Medicaid covering my day hours. This is what I have been using since that time, and it appears with no alternative.

In the last few months, my parents have celebrated their birthdays; with both either at or near retirement age. When most people reach this milestone, they look forward to decreasing their hours at work and doing other activities they enjoy. However, that apparently isn't something my parents are allowed to do.

Mom discovered that if my parents go off of private insurance and start taking retirement funds, it would disqualify me for the Medicaid program I use, as well as other consequences. Iowa uses what's called MCOs, or Managed Care Organizations, for all but a few recipients in the state. I'm one of the few that doesn't use an MCO, and it's a good thing. Many stories of problems with Iowa's system have been documented, including receiving less coverage. We can't find anyone to tell us for certain what I could get covered if I switched, and it very likely would be much less than I use. Also, since my private insurance is through dad's employer, he needs to continue working full-time to receive medical benefits.

This has been an upcoming issue my family has known was coming for about a year. We have looked for solutions, but it appears the only guaranteed answer would require an act of congress. I don't have any plans on running for an elected position, so it's very unlikely that anything would change in the next decade, or three.

Seeing all my parents have done for me, it has been hard not feeling responsible for keeping them from enjoying what they have worked decades to achieve. While attempting to sleep, thoughts of going to a care facility to ease their work load have filled many nights. However, I know that moving to a facility would also end everything I do outside of home.

The only comfort in this, and all, situation is diving deeply into God's Word. Just as He cares for the birds of the air, He knows our needs as well. I have had many times in life that looked uncertain, but God has carried me through. The time before a solution comes is hardest, but it does come in God's time. I have no idea what that could be in this situation, but I will continue to pray, wait, and do His will until change comes.


  1. 🙁 If you are in a care facility you can't go out? What if a friend or relative visits you and wants to spend time with you outside? Is that possible?

    1. If they're able to do my medical cares, I can go with anyone. I wouldn't be able to go to schools, preach, do videos, and other activities I do now without someone coming to help.

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